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The pain of mental illness: dying with dignity

Your Mental Health

Perhaps no issue divides Canadians more than the debate over the right to die with dignity.

And just to be clear, I am writing today about medically assisted suicide, which, beyond the core moral issue, also challenges medical practitioners to make decisions on what it means to “do no harm.”

A little background first: The Supreme Court of Canada in 2015 decided that the Criminal Code of Canada was inconsistent with the Charter of Rights and Freedoms; the prohibition on medical practitioners to assist terribly ill patients in the end-of-life process was challenged.

What the court, in essence, said to Parliament was: “Write a new law.”

That was done, and today, we live in a land where “eligible” Canadians seeking to end their lives because of intractable, painful misery may do so – if they can find legally sanctioned medical practitioners to provide that most intimate final care.

So, what does “eligible” mean?

Currently, people suffering endless pain and terminal illness, who live with a “grievous and irremediable medical condition,” “unbearable . . . suffering,” and who “may be at a point where … natural death is reasonably foreseeable.” These are words from our federal government policy document on the matter.

There is a grey area, and that is the case of mental illness.

As the law is currently written, folks suffering a mental illness who no longer wish to live must also have a physical condition to justify their “eligibility” for a dignified, medically supervised passage from this life.

So, if I get this right, and I think I do, it is not enough to suffer the tortures of bipolar disorder or schizophrenia or depression to warrant the right to explore leaving this Earth in a dignified fashion and at the right time. You’ve got to have a tangible, X-ray-able, blood-testable disease to allow you to even think about that terminal choice.

Many issues cloud our public (and personal) thinking about this.

The first (fogged by social stigma, as always) is that mental illness is somehow less painful, less onerous, than something like cancer or diabetes. The invisibility of mental illness punishes those who live with it, and leaves them unloved and unsupported by their communities.

Another is the legally and medically ethically mandated issue of permission.

Informed consent is very much at the centre of our medical system. We choose or give approval to medical procedures because our doctors explain them to us and because the professionals who make decisions respect our knowledge and permissions.

In the case of folks living with an unbearable mental illness, who may be considering the dignified end to their corporeal existence, the “system” presents a Catch-22. It says “Yes, you have a terrible condition that will dog you for the rest of your years, and we will attempt to treat you with your informed consent, but no, we don’t trust your judgment about your end-of-life plans because, by definition, you are unable to form a rational opinion about your future.”

First, do no harm.

What is allowing and enabling tortured lives to continue? It’s a question we and our medical community are unable to answer.